ASSESSMENT OF QUALITY OF LIFE RELATED WITH HEALTH IN THE MEDICINE

Authors

  • P. O. Gerasymchuk I. Horbachevsky Ternopil National Medical University
  • D. B. Fira I. Horbachevsky Ternopil National Medical University
  • A. V. Pavlyshyn I. Horbachevsky Ternopil National Medical University

DOI:

https://doi.org/10.11603/bmbr.2706-6290.2021.1.11882

Keywords:

quality of life, quality of life related with health, HRQOL

Abstract

Summary. In recent decades, more and more attention has been paid in health practice to the assessment of "health-related quality of life" (HRQOL). The analysis of quality of life indicators allows us to assess not only the health and well-being of the population, but also the quality of medical care and rehabilitation of patients, their effectiveness, and the state of medicine in general.

The aim of the study to learn and analyze domestic and foreign literature sources on modern methods of assessing the quality of life of patients in medicine in the context of science.

Materials and Methods. The search for literature that is freely available in printed publications was conducted in electronic libraries and information resources of the Internet, PubMed, Medline. From the 238 thematic articles found, 76 scientific publications were included in the literature review.

Results. A review of data from the modern scientific medical literature on the study of quality of life in medicine for certain nosological forms of disease has been conducted. The most rational method of assessing the quality of life at the present stage is the use of standardized questionnaires in the study, which is necessary to obtain results that can be compared with each other, regardless of the country of research. Currently, a significant number of special descriptions are known. for nosologies such as diabetes, bronchial asthma, cancer, vascular pathology, etc. However, a significant part of them is under development and adaptations for different countries of the world. The process of cultural adaptation of questionnaires is extremely complex and requires close cooperation of international developers, translators, psychologists in order to use them in different ethnic and cultural and social groups.

Conclusions. Thus, a review of the literature suggests that the concept of "quality of life associated with health" (HRQOL) and its study is a new modern methodology of health care. It allows to evaluate the results of patients' treatment, rehabilitation programs and medical and social adaptation of patients, complementing traditional methods, both at the individual and group levels.

References

Novik TI, Ionova TI. Guidelines for the Study of Quality of Life in Medicine. [Руководство по исследованию качества жизни в медицине] Moscow: RAMS; 2012. Russian.

Novik AA, Matveev SA, Ionova TI. [Assessment of the patient's quality of life in medicine]. Klinicheskaya meditsina. 2000;2: 10-3. Russian.

Rasskazova YeI. [Methods for diagnosing the quality of life in the human sciences]. Vestn. Mosk. Ue-ta. Ser.14. Psikhologiya. 2012;3: 95-07. Russian.

Schalok RL. The concept of quality of life: what we know and do not know. J. of Intellectual Disability Res. 2004;48(3): 203-16. Available from: http://dx.doi.org/10.1111/j.1365-2788.2003.00558.x [Accessed March 2004].

Engel GE. The clinical application of the biopsychosocial model. Am. J.Psychiatry. 1980;137(5): 535-43. Available from: http://dx.doi.org/ 10.1176 / ajp.137.5.535 [Accessed May 1980]

McSweeny AJ, Grant I, Heaton RK, Adams KM, Timms RM. Life quality of patients with chronic obstructive pulmonary disease. Arch Intern Med. 1982;142(3): 473-8. Available from: http://dx.doi.org/10.1001/archinte.1982.00340160057014 [Accessed March 1982]

Wenger NK, Mattson ME, Furberg CD, Elinson J. Assessment of quality of life in clinical trials of cardiovascular therapies. Am. J.Cardiol. 1984;54(7): 908-13. Available from: http://dx.doi.org/10.1016/s0002-9149(84)80232-5 [Accessed July 1984]

Malykhin FT. [Quality of life due to the state of health of elderly and senile persons]. Kachestvennaya klinicheskaya praktika. 2011;1: 11-8. Russian.

Basskin LE. Practical Pharmacoeconomics: How to design, perform and analyze outcomes research. Cleveland: Advanstar Communication; 1998.

Kuapdykov YeK, Abdrakhmanov ZhS. [Quality of life as one of the informative methods for assessing the patient's condition]. Valeologiya. 2010;3: 9-12. Russian

Quality of life. Medical Encyclopedia. Shicago;1995.774 р.

Johnes PW. Quality of life measurement the value of standartization. Eur Resp Rev. 1997;7(42): 42-9.

Karimi M, Brazier J, Health, health-related quality of life, and quality of life: What is the difference? Pharmacoeconomics. 2016;34(7): 645-9. Available from: http://dx.doi.org/ 10.1007/s40273-016-0389-9 [Accessed July 2016].

World Health Organization. The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med. 1995;41(10): 1403-9.

Karimi M, Brazier J. Health, Health-related quality of life, and quality of life: What is the difference? Pharmaco Economics. 2016;34(7): 645-9. Available from: http://dx.doi.org/ 10.1007/s40273-016-0389-9 [Accessed July 2016].

Adeeva TN, Tikhonova IV, Khazova SA. [Life trajectories of adults with disabilities: theory and practice of research]. Peterburgskiy psikhologicheskiy zhurnal. 2017;4: 25-44. Russian

Surmach MYu. [Health-related quality of life as a subject of study in the sociology of medicine]. Sotsiologiya. 2011;2: 100-4. Russian.

Spiridonov SP. [Life quality indicators and methodologies for their formation]. Voprosy sovremennoy nauki i praktiki. 2010;10-12 (31): 208-23. Russian

Afanaseva YeV. [Assessment of health-related quality of life]. Kachestvennaya klin. praktika. 2010;1: 36-8. Russian.

Vasserman LI, Trifonova YeA, Fedorova VL. [Internal picture of the disease in the structure of the quality of life in patients with somatic pathology]. Sibirskiy psikhologicheskiy zhurnal. 2008;27: 67-71. Russian.

Novik AA, Ionova TI, Kishtovich AV. [General questionnaire of the study of the quality of life of the 2nd generation NJQoL-29]. Vestnik mezhnatsionalnogo tsentra issledovaniya kachestva zhizni. 2007;9-10: 25-31. Russian.

Savchenko TN, Golovina GM. Subjective quality of life: approaches, assessment methods, applied research. [Субъективное качество жизни: подходы, методы оценки, прикладные исследования]. Moscow: Publishing house "Institute of Psychology RAS"; 2006. Russian.

WHOQOL Croup. Whoch Quality of life? World Health Forum. 1996;17(4): 354-6.

Guryleva ME, Zhuravleva MV, Aleeva GN. [Quality of life criteria in medicine and cardiology]. Russkiy meditsinskiy zhurnal. 2006;10: 761-3. Russian

Yevdokimov VI. [Scientific and methodological problems of assessing the quality of life]. Vestnik psikhiatrii. 2008;27: 102-31. Russian.

Ware JE, Gandek B. Methods for testing data quality, scaling assumptions and reliability: he IQOLA Project Approach. J. Clin. Epidemiol. 1998;51(11): 945-52. Available from: http://dx.doi.org/ 10.1016/s0895-4356(98)00085-7 [Accessed November 1998].

Makai P, Brouwer WBF, Koopmanschap MA, Stolk EA, Nieboer AP. Quality of life instruments for economic evaluations in health and social care for older people: A systematic review.Soc. Sci Med. 2014;102: 83-93. Available from: http://dx.doi.org/ 10.1016/j.socscimed.2013.11.050 [Accessed 2014].

Moroz IN. [Health-related quality of life assessment tools]. Voennaya meditsina. 2019;4: 78-85. Russian.

Yevsina OV. [Quality of life in medicine is an important indicator of a patient's health]. Elektronnyy nauchnyy zhurnal «Lichnost v menyayushchemsya mire: zdorove, adaptatsiya, razvitie». 2013;1: 119-33. Russian.

Sosnowski R, Kulpa M, Ziętalewicz U, Wolski1 JK, Nowakowski R, Bakuła R, et al. Basic issues concerning health-related quality of life. Cent European J Urol. 2017;70: 206-11. Available from: http://dx.doi.org/ 10.5173/ceju.2017.923 [Accessed 2017].

PROQOLID, the Patient-Reported Outcome and Quality Of Life [Electronic resource]. 2001-2014. Available from: http://www.proqolid.org.

Zoloev GK, Vasilchenko YeM. [Research on quality of life in clinical practice]. Meditsina v Kuzbasse. 2004;1: 41-4. Russian.

Yin S, Njai R, Barker L, Siegel PZ, Liao Y. Summarizing health-related quality of life (HRQOL): development and testing of a one-factor model. Population Health Metrics. 2016;14 (22): 22-30. Available from: http://dx.doi.org/ 10.1186/s12963-016-0091-3 [Accessed 2016].

Novik AA, Ionova TI. Guidelines for the Study of Quality of Life in Medicine. [Руководство по исследованию качества жизни в медицине] Saint Petersburg: Neva. OLMA-PRESS Star World; 2002. Russian.

Eurohis. Development of a generic health survey toolkit. [Разработка общего инструментария для опроса о состоянии здоровья] Moscow: Human rights; 2005. Russian.

Mihaila V, Enachescu D, Davila С. General Population Norms for Romania using the Short Form 36 Health Survey (SF-36). QL News Letter. 2001; 26:17-8.

Makarova UI, Yagudina RI. [Metology for calculating QALY in pharmacoeconomic modeling: using questionnaires for studying the patient's quality of life]. Farmakoekonomika, teoriya i praktika. 2018;1(6): 7-12. Russian. Available from: http://dx.doi.org/ 10.30809/phe.1.2018.1 [Accessed 2018].

Ilic I, Milic I, Arandelovic M. Assessment quality of life: current approaches. Acta Medica Medianae. 2010;49(4): 52-60.

Sirgy MJ, Michalos AC, Ferris AL, Richard A, Easterlin RA, Patrick D, et al. The quality of life (QOL) research movement: Past, present and future. Social Indicators Res. 2006;76 (3): 343-466. Available from: http://dx.doi.org/10.1007 / s11205-005-2877-8 [Accessed March 2006].

Vlasov VV. The effectiveness of diagnostic tests. [Эффективность диагностических исследований] Moscow: Medicine; 2001. Russian.

Zvyagina NM, Kudrenko SS, Antonov OV. [Quality of life as a criterion for assessing the effectiveness of treatment and rehabilitation programs]. Journal of Siberian Medical Sciences. 2015;6: 30-6. Russian.

Jenkinson С, Coulter A, Wright L. Short form 36 (SF-36) health survey questionnaire: normative data for adults of working age. BMJ. 1993;306(6890): 1437-40. Available from: http://dx.doi.org/10.1136 / bmj.306.6890.1437 [Accessed 1993].

Cella DF. Quality of Life: concepts and definition. J. Pain Symptom Manage.1994; 9 (3):186-92. Available from: http://dx.doi.org/10.1016/0885-3924(94)90129-5 [Accessed March 1994].

Eurohis: Development of a common toolkit for a health survey. [Разработка общего инструментария для опроса о состоянии здоровья] Мoscow: Human rights; 2005. Russian.

Gote SV, Konstantinov VK. [Methods for assessing the quality of life of living organ donors]. Vestnik transplantologii i iskusstvennykh organov. 2017;1:82-8. Russian. Available from: http://dx.doi.org/ 10.15825/1995-1191-2017-1-82-88 [Accessed 2017].

Parolin MB, Lazzaretti CT, Lima JH, Freitas AC, Matias JE, Coelho JC. Donor quality of life after living donor liver transplantation. Transplant. Proc.2004;4(36): 912-13. Available from: http://dx.doi.org/10.1016/j.transproceed [Accessed May 2004].

Yevsina OV. [Quality of life in medicine is an important indicator of a patient's health status]. Lichnost v menyayushchemsya mire: zdorove, adaptatsiya, razvitie. 2013;1: 119-33. Russian.

Zholdasbekova AS, Kalmataeva ZhA. [Modern approaches to the study of the quality of life in medicine and cardiology]. Vestnik KazNMU. 2016;3: 1-6. Russian.

Haverman L, van Rossum MAJ, van Veenendaal M, van den Berg M, Dolman KM, Swart J, et al. Effectiveness of a Web-Based Application to Monitor Health-Related Quality of Life. Pediatrics. 2013;131(2): е533-е43. Available from: http://dx.doi.org/10.1542/peds.2012-0958 [Accessed February 2013].

Ferreira LN, Ferreira PL, Pereira LN. Comparing the performance of the SF-6D and the EQ-5D in different patient groups. Acta Med. Port. 2014;27(2): 236-45. Available from: http://dx.doi.org/ 10.20344/amp.4057 [Accessed February 2014].

EQ-5D. Electronic resource [Электронный ресурс]. Available from: https://euroqol.org/ [Accessed 20.01.2021].

Assessment of quality of life. Electronic resource [Элетронный ресурс]. Available from: http://aqol.com.au/ [Accessed 20.01.2021].

Komelyagina YeYu, Antsiferov MB, Uvarova OM. [Russian-language version of the questionnaire for assessing the quality of life of patients with peripheral polyneuropathy: validation and application prospects]. Sakharnyy diabet. 2014;17(2): 56-65. Russian. Available from: http://dx.doi.org/10.14341/DM2014256-65 [Accessed February 2017].

Measuring and valuing health. The University Of Sheffield. Electronic resource [Элетронный ресурс]. Available from:

https://ugc.futurelearn.com/uploads/files/58/b4/58b44004-14ce-45eb-886c-db5fa958ae5/Measuring_and_Valuing_Health_Useful_Terminology.pdf.

Huber MB, Felix J, Vogelmann M, Leidl R. Health-Related Quality of Life of the General German Population in 2015: Results from the EQ-5D-5L. Int J Environ Res Public Health. 2017;14(4): 426-37. Available from: http://dx.doi.org/10.3390/ijerph14040426 [Accessed April 2017].

Golicki D, Niewada M. EQ-5D-5L Polish population norms. Arch Med Sci. 2017;13(1): 191-200. Available from: http://dx.doi.org/10.5114/aoms.2015.52126 [Accessed January 2017].

Mujica-Mota RE, Roberts M, Abel G, Elliott M, Lyratzopoulos G, Roland M, et al. Common patterns of morbidity and multi-morbidity and their impact on health-related quality of life: evidence from a national survey. Qual Life Res. 2015;24: 909-18. Available from: http://dx.doi.org/ 10.1007/s11136-014-0820-7 [Accessed 2015].

Sukhonos YuA. Features of the population study of the quality of life. [Особенности популяционного исследования качества жизни]. Saint Petersburg.2003;13 Available from: http://www/dissercat.com/content/osoben­nosti-populya­tsionnogo-issledovaniya-kachestva-zhizni. [Accessed 19.01.2021].

Baker F, Intagliata J. Quality of life in the evaluation of community support systems. Evaluat Progr Plann. 1982;5(1): 69-79. Available from: http://dx.doi.org/ 10.1016/0149-7189(82)90059-3 [Accessed January 1982].

Skevinkton SM, Wright A. Changes in quality of life of patients receiving antidepressant medication in primary care: validation of the WHOQOL-100. The British J. of Psychiatry. 2001;178: 261-7.

SF-36 Health survey. Health assessments lab, medical outcomes trust and quality metric incorporated. 2006.

Shipova NS. [Application of the methodology "Brief WHO questionnaire for assessing the quality of life" in the study of persons with disabilities] Vestnik KGU.2018;4: 250-5. Russian

Ware JE, Sherbour CD. The MOS 36-item short form health survey: Conceptual framework and item selection. Medical Care. 1992;30(6): 473-83.

Campolina AG, Ciconelli RM. SF-36 and the development of new assessment tools for quality of life. Acta Reumatol Port. 2008;33(2): 127-33.

Shostak NA, Klimenko AA, Shemenkova VS, Svet AV. [The use of the SF-36 questionnaire in assessing the quality of life in patients with chronic thromboembolic pulmonary hypertension]. Klinitsist. 2017; 3-4(11): 44-9. Available from: http://dx.doi.org/ 10.17650/1818 8338 2017 11 3-4-44-49 [Accessed November 2017]. Russian.

Ware JE. Measuring patients’ views: the optimum outcome measure. SF 36: a valid, reliable assessment of health from the patient’s point of view. BMJ. 1993; 306 (6890): 1429-30. Available from: http://dx.doi.org/ 10.1136/bmj.306.6890.1429 [Accessed 1993].

Lins L, Carvalho FM. SF-36 total score as a single measure of health-related quality of life: Scoping review. SAGE Open Medicine. 2016;4: 1-12. Available from: http://dx.doi.org/ 10.1177/2050312116671725 [Accessed 2016].

Amirdzhanova VN, Goryachev DV, Korshunov NI, Rebrov AP, Sorotskaya VN. [Population indicators of quality of life according to the SF-36 questionnaire]. Nauchno-prakticheskaya revmatologiya. 2008;1(46): 36-48. Available from: http://dx.doi.org/ 10.14412/1995-4484-2008-852 [Accessed 2008]. Russian.

Pelle AJ, Kupper N, Mols F, de Jonge P. What is the use? Application of the short form (SF) questionnaires for the evaluation of treatment effects. Qual Life Res. 2013;22(6): 1225-30. Available from: http://dx.doi.org/ 10.1007/s11136-012-0266-8 [Accessed June 2013].

Instructions for processing data obtained using the SF-36 questionnaire. [Инструкция по обработке данных, полученных с помощью опросника SF-36]. Available from: http://bono-esse.ru/blizzard/RPP/sf36.pdf. Russian.

Skevington SM, Lotfy M, O’Connell KA. The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial A Report from the WHOQOL Group. Quality of Life Res. 2004;13(2): 299-310. Available from: http://dx.doi.org/ 10.1023/B:QURE.0000018486.91360.00 [Accessed February 2004].

Burkovskiy GV, Kabanov MM, Kotsyubinskiy AP, Levchenko YeV, Lomachenkov AS. The use of the quality of life questionnaire (WHO version) in psychiatric practice: A guide for doctors and psychologists. [Использование опросника качества жизни (версия ВОЗ) в психиатрической практике: Пособие для врачей и психологов] Saint Petersburg; 1998. Russian.

Ferreira LN, Ferreira PL, Pereira LN. Comparing the performance of the SF-6D and the EQ-5D in different patient groups. Acta Med. Port. 2014; 27(2): 236-45. Available from: http://dx.doi.org/ 10.20344/amp.4057.79 [Accessed February 2014].

EQ-5D [Electronic resource]. Available from: https://euroqol.org/ [Accessed 03.01.2021]

Khabibullina AR, Aleksandrova YeA. [Methodology for assessing health-related quality of life using the EQ-5D-3L questionnaire]. Rossiyskiy meditsinskiy zhurnal. 2019;4(25): 202-9. Available from: http://dx.doi.org/ 10.18821/0869-2106-2019-25-4-202-209 [Accessed 2019]. Russian.

Amirdzhanova VN, Erdes ShF. [Validation of the Russian version of the general questionnaire EuroQol-5D (EQ-5D)]. Nauchno-prakticheskaya revmatologiya. 2007;3(45): 69-76. Available from: http://dx.doi.org/10.14412/1995-4484-2007-691 [Accessed 2007]. Russian.

Published

2021-05-22

How to Cite

Gerasymchuk, P. O., Fira, D. B., & Pavlyshyn, A. V. (2021). ASSESSMENT OF QUALITY OF LIFE RELATED WITH HEALTH IN THE MEDICINE. Bulletin of Medical and Biological Research, (1), 112–122. https://doi.org/10.11603/bmbr.2706-6290.2021.1.11882